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CHILDREN IN CRISIS:
KIDS' MENTAL HEALTH NEEDS LOST IN SCRAMBLED SYSTEM
Many wind up in custody, not treatment
How many of Michigan's children could be greatly
helped by early, ample mental health care is anybody's guess. But
experts agree the needs far outpace what's available. “There are many
children who could benefit from mental health interventions who don't
get it in a timely and appropriate manner,” said Patrick Barrie, who
oversees mental health services at the Michigan Department of Community
Health. But with no single entry route into the system, pervasive budget
woes and insufficient insurance coverage, hundreds of Michigan children
instead end up in detention facilities or as wards of the state.
Thousands of others receive inadequate or no mental health care. Access
to services is confusing, and eligibility requirements often discourage
early intervention, meaning it often takes a crisis to get help.
Today as well as the next two Tuesdays, the Free Press
will detail how children with schizophrenia, bipolar disorder,
depression, anxiety and other mental illnesses succeed or fail in
getting mental health services. Through the eyes of children who are in
treatment, locked up or on the brink, we explore what it takes to get
services, what's available and the impact on families when a child needs
mental health care. The Michigan Department of Community Health (DCH)
estimates that 545,000 of the 2.5 million children in Michigan in 2002
had a mental disorder, the most recent year for which data are
available. Among children ages 9-17, the state estimated that between
66,000 and 120,000 have a serious emotional disturbance, which can
include severe anxiety and schizophrenia. Barrie and other DCH officials
concede that they don't have an exact count of how many children in
Michigan have mental disorders, but they base their estimates on
national mental illness prevalence rates and state statistics of how
many children have accessed services.
The DCH, through county agencies, provides things such
as therapy and case management to more than 28,000 children age 17 and
younger who have been diagnosed with mental illnesses, and 1,192 others
with developmental disabilities and mental disorders. An additional
25,000 children get short-term help from Medicaid, the federally funded
program providing medical care for poor people and people with
disabilities. But children with mental disorders also land in juvenile
detention facilities, the foster care system, or receive some services
through the public school system. No one tracks how many children get
mental health services through these other means, nor is there a way to
know how many parents pay for private help. But with treatment costing
tens of thousands of dollars a year, children with enduring mental
illness usually end up getting public assistance.
“There are a variety of systems dealing with children,
and it creates the possibility of none of them doing as much as they
could for these kids. When the other one doesn't step in, as often
happens, then nobody's doing anything for these kids,” said Elizabeth
Bauer, a member of the Michigan State Board of Education who also serves
on the Michigan Mental Health Commission, appointed by Gov. Jennifer
Granholm. All the dozens of mental health experts interviewed for this
series agree that state and federal funding in the past five years has
remained, at best, stagnant, while demands on the system have grown. DCH
officials said funding for children's mental health care has been flat
since 1998. In that year, the department spent about $2,569 for each
Michigan child with a mental illness; in 2003, it was $4,167 — a
negligible amount when one therapy session can cost more than $100, and
residential treatment facilities typically cost in excess of $250,000 a
year. The total DCH budget for children's services in 1998 was $111.7
million, and $122.5 million in 2003, said Judy Webb, director for DCH's
division of quality management and planning. “We've seen a reduction in
the numbers of people served, but an increase in the amount spent per
person," Webb said. "We've been using our limited dollars for treating
the more severely impaired population.”
Moreover, prevention programs for the state's children
have been slashed. In 1999, DCH spent $11.3 million on prevention, but
just $3.1 million in 2003. With funding shortages elsewhere, “prevention
sort of goes on the back burner,” Webb said.
The Michigan Department of Education did not return
requests for how many children with mental illness it serves, or how
much is spent on special education for children with mental disorders.
The Family Independence Agency does not track how many
children receive its mental health care, said FIA spokeswoman Maureen
Sorbet. But she said, “Lots of our children, especially in juvenile
justice and foster care, certainly receive those services,” such as
therapy with a psychologist or psychiatrist. Meanwhile, state-run
psychiatric hospitals for adolescents have dwindled from six in the late
1980s and early 1990s to just one today — Hawthorne Center in
Northville, which has about 90 beds for long-term, institutional care.
Experts pushed for more community-based services to end the warehousing
of mentally ill children, but shuttering hospitals also was a
cost-cutting measure. The DCH said those saved dollars went toward
programs that help children get family counseling and other services
while living at home, but experts say that didn't happen. Instead, many
children who act out while awaiting placement in a health-care facility
end up in juvenile detention, experts say.
“Incarceration not only sends a negative message about
the child's worth, it has horrible consequences. Kids with mental
illness or emotional disorders in these settings are very vulnerable to
physical and sexual assaults, worsening of symptoms, and the suicide
numbers are four times more than the general population of teens,” said
Susan McParland, executive director of the Michigan Association for
Children with Emotional Disorders. In some cases, parents who feel they
have no other options are giving their children up, either by
petitioning themselves on neglect charges or making their children wards
of the court. Custody relinquishment to obtain mental health services
for children is illegal. But according to a 2003 report by the U.S.
General Accounting Office, at least 12,700 American families have done
so, including at least 160 children in Oakland County and 400 in Wayne
County. Advocates believe the numbers are much higher.
The state is aware of the problems facing children who
are mentally ill. Since January, the governor's commission has been
taking suggestions and discussing ways of improving care. The 33-member
commission is meeting Sept. 20 to discuss a list of recommendations,
which will be presented to Granholm by month's end. Advocates applaud
the efforts as a start but say a national effort is needed to save
children from further mental distress, interrupted family life and
juvenile detention.
“The access to services for children with mental or
emotional disorders ranges from bad to worse in this country. It's
tearing families apart,” said Christopher Burley, deputy director of
communications for the Bazelon Center for Mental Health Law, a
Washington, D.C.-based advocacy organization for people with mental
disabilities.
“Every day that policy-makers fail to act on this is
another night that 2,000 kids across this country are going to bed in
juvenile detention facilities because they can't find mental health
services in the community.”
Laura Potts
31 August 2004
http://www.freep.com/news/health/mental31e_20040831.htm
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