ADHD no laughing matter for parents

You don't hear a word your mother is saying - you just see her lips moving.
Even if you do manage to take notes in class, you can't read them.

"Earth to Jeffrey" has been your nickname since preschool. Those are just a few of the indicators that a person is suffering from Attention Deficit Disorder or Attention Deficit Hyperactive Disorder (ADD/ADHD), according to author and former teacher Chris Zeigler Dendy. The often humorous descriptions included in one of Zeigler's books are no laughing matter for the teens for whom the "how-to" manual is written, who struggle each day with tasks that come easy to their peers. ADD/ADHD can set students up for failure, or "12 years of academic agony," as Dendy describes it. But Dendy, a respected lecturer and mother of two children with the disorder, claims that with early diagnosis and treatment - and with the right educational approach - these often intelligent and creative individuals can go far in the world. "These kids have these challenges and you don't just throw up your hands and say, 'Too bad,'" Dendy noted. "You need to help them cope without (them) feeling stupid or lazy. It's about helping parents look for the positives and build on their child's strengths." Dendy will offer ways for parents and teachers to deal more effectively with children and teens with this neurobiological disorder. "Improving School Success: How Executive Function Affects Students with ADHD and Learning Disabilities" is the topic of a seminar to be held Tuesday, Oct. 18, from 8:30 a.m. to 3 p.m. at the Mississippi Bend Area Education Agency, 729 21st St., Bettendorf. The morning session will focus on less well-known characteristics of the condition, while the afternoon session touches on reasons for school failure and effective intervention strategies. The $10 fee includes breakfast, lunch and refreshments. There is no charge to attend the sessions themselves (no food included). A second workshop will be held that evening from 6:30 to 8:30 p.m., also at the AEA. "Reframing ADHD: Parenting Children and Teens with ADHD" will focus on the day-to-day joys and challenges of raising kids with ADD or ADHD, and how to establish realistic expectations. The event is free. Deadline for registering for the workshops is Oct. 13. You may register online at www.aea9.k12.ia.us or call Carol Aden at (563) 344-6287. The workshops are being offered by CHADD (Children and Adults with Attention Deficit Disorder) of Iowa, in conjunction with the AEA, Riverbend Psychological Association, North Scott Schools and North Scott ADHD Support Group. Organizers of the event hope to increase awareness of the disorder, while educating the public about its effects on behavior and learning abilities. noted Dendy.

Bad parenting? Too often, the public attributes the sometimes disruptive behavior of ADHD-affected children to bad parenting, said Chris' husband, Tommy Dendy, who will also be participating in the workshops. "They assume we don't know what we're doing, that we won't discipline our kids. It's kind of hard to get past that," said Tommy, whose own son by a previous marriage was not diagnosed with the disorder until he had already experienced plenty of failure in school. Discipline was never lacking in the Dendy home. Tommy always assumed that a firmer hand was what his son, Steven, needed. Like many parents, Tommy never considered that Steven's lackadaisical performance in school could be due to a neurological problem. "I thought he was just lazy and I thought I could fix the problem with discipline. I was tough," Tommy admitted. "In the long run, his self-esteem really got damaged." So much so, that the youth became suicidal, he said. After Tommy and Chris were married, Chris observed that Steven showed many of the signs of ADD/ADHD that her son, Alex Zeigler, exhibited. With her prompting, Steven sought a medical opinion and was diagnosed with the disorder at age 20. He has taken medication to help with his concentration. "The beauty of it is, once we diagnosed the ADHD and helped him understand what was going on with him, he was really able to shine," Chris stated. "Now he's in a highly responsible, high-energy job." Steven is only one of many coping with ADD/ADHD, which affects some 5-12 percent of children worldwide, according to Chris. It is an inherited disorder that runs in families, and while some symptoms appear to diminish with age, those with the disorder do not "grow out of it," research shows. Boys with ADHD outnumber girls approximately 3-to-1. However, girls are one segment of the population that is often under-diagnosed, since they tend to be quieter and less disruptive than their male counterparts (Chris' daughter, Audrey, effectively compensated for her ADHD and was not diagnosed until her son, Nathan, was). Also under-diagnosed are African-Americans, Hispanics and the intellectually gifted. So what exactly is ADD/ADHD? It's a neurobiological disorder that is believed to affect the neurotransmitters of the brain. In people with ADD/ADHD, the brain's chemical messengers do not work properly, leading to inattention and impulsiveness, among other problems. The disorder, first identified a century ago but more accurately defined as ADD in the 1980s, is divided into two distinct types: ADHD with predominantly hyperactive and impulsive behavior; and ADHD predominantly inattentive, without hyperactivity (teachers call this ADD). Those with the former seem to be heading in all directions at once; the latter are the daydreamers. ADHD often affects what researchers have labeled the executive function of the brain, that is, our gray matter's CEO that serves as the organizer and planner of our thought processes. The vast majority (90 percent) of children with ADD/ADHD will experience difficulty in school, said Chris. Those with the disorder lag behind their peers developmentally by about 30 percent, which can translate into a delay of 4-6 years for teenagers dealing with the disorder. "As a result they may seem immature or irresponsible," Chris noted.

Tip of the iceberg Complicating matters is the fact that in two-thirds of cases, ADD/ADHD is accompanied by other conditions such as depression or anxiety. "I compare (the disorder) to an iceberg. A lot of the problems are hidden beneath the surface. You don't see them, but he's got all these other issues he's dealing with," she said. There is no test for ADHD, but school failure should be considered a "red flag." Severe cases may be diagnosed before children enter school, but more milder forms may go unnoticed until junior high school, when expectations of student responsibility greatly increase. Luckily, attention deficit can be overcome with the right medication and teaching/parenting strategies in place. Chris cites the success of her own family members with ADHD - including her then-undiagnosed father, a "school failure" who became a judge and respected leader of the community. "These people can be very successful. It doesn't have to be a terrible thing if we provide people (with) positive experiences," she said. "Sometimes we forget that characteristics of ADHD that are challenging during the school years are often valued in adulthood!" So how do you know if you or your child has the disorder? In her book, "A Bird's-Eye View of Life with ADD and ADHD: Advice From Young Survivors," written in collaboration with her son, Alex, Chris lists characteristics common among those with the condition. Individuals vary, and not all experience the same symptoms. But here are some indicators: Forgetful and disorganized - Often forget that an assignment or project is due. Can't remember where they put things. Live in the here and now. Inattentive - Have difficulty focusing on what others are saying; often daydream. Impulsive - Are often risk-takers; blurt things out without thinking; may spend money impulsively. Late - Have a poor sense of time; can't estimate how long it will take to do things. Problems falling asleep and waking up - May toss and turn for hours, or sleep so soundly "an earthquake won't wake you," the author says. Messy handwriting - While taking notes in class can be a challenge, reading them can be even more difficult. Slow at reading and writing, or rushing through schoolwork - This is attributed to poor fine motor coordination, limited working memory capacity, and a slow processing speed. By the time they get to the bottom of the page, they've forgotten what they read. Most prefer printing to writing cursive. Problems writing essays and reports - Often have creative ideas, but can't get them down on paper in an organized fashion. Difficulty memorizing math facts and formulas - Retrieving formulas stored in the brain can be difficult. Math builds on previous skills that may not have been mastered. Procrastination - Have a hard time getting started on homework; often have to cram to finish by a deadline. They simply don't know where to start, so they don't start at all. Difficulty controlling emotions - May have outbursts; get frustrated easily. Restless/hyperactive - Have trouble sitting still; easily bored; can't stand staying home.

Prescription for success? Those who exhibit six of the indicators are considered to be suffering from the disorder. Fortunately, many people with ADD/ADHD respond well to medication designed to improve the thought pathways, known as synapses, in the brain. But many parents are reluctant to put their children on medication, a fear fueled by what the Dendys view as irresponsible media reports decrying the "over-drugging of our youth." The couple admits they weren't immune. "No parent wants to put their child on medication. We struggled with that and avoided it forever," Tommy admitted. "When our youngest son was first diagnosed, we used to send him to school (on) medication and try to do homework without (him taking his medication). What a fight that was. If I had to do it all over again ...," he stated. "We meet with a lot of parents whose kids are struggling with the disorder and they're determined that they're not going to give their kids medication. Meanwhile, the kid is going down the tubes," Tommy observed, adding that research has shown the effectiveness of such treatment. He wishes his own son had been diagnosed early, as two of the couple's grandchildren were. "They'll never know the school failure," Chris said of the next generation. In addition to performing better on tasks, students who take medication for the disorder also are more apt to steer clear of illegal drug use. Studies show that kids who have ADHD and take medication are less likely to use illicit drugs than ADHD sufferers who do not. The latter, Chris said, "tend to self-medicate with drugs like alcohol and marijuana." Medication can improve school performance and help keep a student from dropping out, another risk factor for drug abuse. In addition to the medication, there are methods that parents and teachers can use to help those with ADD/ADHD cope with the disorder. "You have to give them more prompts, more reminders - help them with strategies and things like Palm Pilots and alarms to make sure they get places on time," Chris related. "Sometimes you have to do things to help them plan ahead and structure." Punishment isn't the answer, as many with ADHD fail to learn from past mistakes. "They repeat the same (bad) behavior. ...They don't learn as easily from punishment and reward," Chris said. Parents and teachers need to turn what are perceived as negative characteristics into positive ones, a process known as reframing. For instance, hyperactivity = high-energy; strong-willed = tenacious. But first parents and teachers have to recognize what they're dealing with. And that's why education is so important, the Dendys stress. "We want to help others avoid the mistakes we made," Chris said. "School is probably the toughest environment that any of us can face. If we can help them make it through school and build on their strengths, they can be very successful later in life."

Barb Geerts
12 October 2005

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